Showing posts with label glioblastoma. Show all posts
Showing posts with label glioblastoma. Show all posts

Thursday, August 16, 2007

What I have

When Dr Fineman finally got my head opened up and could see the tumor, he found that it was not a slow-growing, benign tumor, but instead just the opposite: a glioblastoma multiforme or GBM,the most aggressive form of the primary brain tumors known collectively as gliomas. He broke the news to Frances and me today at our initial post-operative meeting with him. These results are still preliminary, however, since the pathology report is not finished. We will have a second post-operative meeting with him next Wednesday, hopefully with the final pathology report.

But from my perspective, there is NO REASON to despair. Although the "average" patient with a GBM may not do particularly well, I have never been "average" in anything I've done, and I sure don't plan to start now. There are patients who beat this, and I plan to be one of them. I have a crack medical team, a wonderful wife and family, and great friends and colleagues world-wide. I am involved in scientific work (energy research, specificallly fuel cells) that I find very stimulating, and that I believe is important, not only for my personal survival, but for our survival as a civilization into he next decades and centuries. That must count for something!

I am not one to rely on "God" stepping in to fix things - I tend to trust in science and technology. (Nevertheless, prayers to the God of your choice [Christian, Jewish, Buddhist, ...] will be gratefully accepted!) GBMs do respond to radiation and chemotherapy, and so there are things one can do to fight the residual tumor that couldn't be surgically resected. I am more than happy to do radiation, chemo, or whatever it takes to beat this thing! I feel we're only beginning to fight!